[-]Have a dd (1st grade) who is struggling with reading at school. I read to her every night but was wondering if there are any online sites or products that I can buy to help her more. I don't want to make it a big deal for her (or me). Just thought it would be a change of pace for her once in awhile than me just reading to her. Thanks.
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[-]Anyone with LD dc in public CTT prog.? Is it enough? I'm trying to decide whether to go this route with 5 yo dc or go private...
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[-]Need help - no flames please! Someone on gen topics board suggested we ask here. We need a therapist rec for our 4 yo dd. Pref UWS, takes insurance. Our issue is that she is mean. I don't know how else to describe it. She's also detached and rarely connects to anyone besides us, her grandparents, and one or two close friends. She's otherwise a healthy normal kid: talks a lot, loves to play, etc. But the meanness and detachment is upsetting to me. I really need some help. TIA.
15 replies [ Reply | Watch | Options ]I have two names for you. Both helped my DC. Barbara Russek; 30 East End Ave @ 81st Street; 212-737-8370. and Sandy Greenbaum; 50 W 97 Street 1E; 212-362-3475
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Lenox Hill Hospital Mental Health division could probably give you a referral to someone who takes your insurance. 212-434-3365. Also call the 5th Avenue Center for Psychotherapy 212-989-2990. Karen Horney Clinic may be able to help also. 212-838-4333 ext. 125.
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You are doing the right thing to address this. My younger sister (by 10 years) was always a bit "cold" as well growing up. She didn't like to share, had difficulty making and keeping friends, wasn't particularly personable. She ended up getting therapy as a teenager and was diagnosed with some particular disorder and medicated. She is now in her mid-20's and still has inappropriate outbursts and self-destructive behavior. She is extremely intelligent, but this has not helped her build a steady career. I hope by taking early steps, you are able to create a better path for your child.
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First, I think you are a great mom for having the objectivity to know this about your child & want to help her. My DD had other issues but Norma Doft on CPW & around 90's was a great help. Sandy Greenbaum gets mixed reviews. Probably every therapist has kids they're better able to help than others so try Sandy, Norma or whomever & see who works for your DD. It's truly not a one size fits all kind of field.
[ Reply | Options ]op: Thanks. Did Doft take insurance? I left a mssg for Greenbaum although I heard the same. I'm going to try Doft. Thank you.
[ Reply | Options ]Good luck. I can't remember if Doft took insurance. Maybe not but I really am not sure.
[ Reply | Options ]np: My child sees Norma Doft for a social skills group and we submit the invoice to insurance afterward - our policy covers it. She is great. However, I think that in addition to seeing a psych, a thorough eval would be a good idea, just to get a broader sense of what might be going on. I would suggest a neuropsychologist.
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[-]Does anyone have experience with PPD-NOS? If you know of anyone, did the child "grow" out of the dianosgis?
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how old was the child? when were they retested? I ask because DS has the dx but is age appropriate in all area but speech. Very social and doesn't do any repeative movements.
[ Reply | Options ]my dd had the same things, and very early reader and very easily distracted visually. She was retested at 6 when it was obvious that had matured out of it. i actually doubt the whole diagnosis and think it's been a catch all for kids at all out of the norm
[ Reply | Options ]Did you go forward with intensive services? The doctors are suggesting 20-25 hours/week of services like speech, OT, etc.
[ Reply | Options ]dd had speech, PT and play therapy from 20month-36 months. Then OT until about 6, at which point it was obvious that she didn't need it anymore. They retested her through her school then and moved her out of services.
[ Reply | Options ]DS is currently doing 14 hours of therapy. I have seen a big difference but wonder if it's the age and he would have gotten to this point on this own or the services. Would you do more hours if you were me? Sorry to be asking all of these questions. Thanks for the info.
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I would talk directly to your therapists about what they feel he needs. Usually they are the best judges of progress. Also, don't be afraid to switch therapists if you don't think one of them is right. We went through 3 play therapists before we got someone great. I would go for as many hours as you qualify for through EI. There is nothing to lose as long as ds is having fun with them. (and he's really young so don't worry!)
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[-]DD has had difficulty in school since Pre-K. Very well behaved, but just always behind academically, in a catching up mode, and requires lots of help from me to master the concepts she needs to learn. 1st grade so far has been difficult, and I spent a lot of time with her going over what's covered in class and doing extra practice. I always thought she had issues with auditory processing (sp?) bc. sometimes when I read to her or talk to her for a while withouth pausing or recaping, she seems to just go blank and not process what's been said. Her ST called me yesterday and pointed out that she's been noticing that DD is daydreaming a lot in school, and easily distracted, and basically has a hard time focusing and paying attention - so wonder...
9 replies [ Reply | Watch | Options ]hard to imagine a preK/K student always being behind academically. Even this early in 1st grade, there is a range. If you have been academically playing catch up since preK, perhaps you are pushing her in ways that are out of synch with her developmental timeline. there is too much stress on academics from too young an age. perhaps she is shutting down because of this?
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does anyone not think it is strange that this woman has seen her dc as academically catching up since preK when the dc was 3-4 yo? Where are we taking kids these days?
[ Reply | Options ]I am 'this woman' Don't understand the question. Yes DD has always been in the catch up mode. She is by no means in the super competitve program, she is a March child, so not too young for her grade, but learning comes hard to her. It took her a while to learn letters and sounds and she was among the last ones in her class to do so. It took her a while to start reading, and the approach they used in school just did not click. I had to do a different reading program with her at home to teach her to read. Math and money was difficult in K and we had to practice a lot at home. Looking for support and feedback, not negative comments.
[ Reply | Options ]I would suggest you go over to the other message board and post on Special Needs. That site is much more helpful with these types of questions. GL
[ Reply | Options ]this is poster from below...for crying out loud a kid who is finding school hard is not special needs! The kid is just a kid who finds school hard! Is the child made to feel bad at school? or at home God forbid? I don't know, it is grade 1, I can say with certainty no one thought I was an academic whiz but oddly enough I attended a top uni and use my brain for my job. Really. It is grade 1!
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My DD seemed like this in K and 1st - and I did not push her nor supplement with at home stuff beyond normal everyday reading, money counting etc. She always caught up by the end of the year. I can say without a doubt that I think academic intelligence is just one part of a person's makeup. My DD clearly is not strongest in the academic area. That's ok with me, she tries and does the work and she is reading and doing math just fine, but not at the top of the class. I figure if she wants to apply herself academically, she will. My job is to also give her the opportunity to develop in other areas as well, that in my view are just as important as academics.
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[-]So when do you know if your kindergarten child needs an "evaluation"?
12 replies [ Reply | Watch | Options ]either the teacher will have a "meeting" with you to discuss this. If, in your gut, you feel something is not quite right, you can call DOE and ask them to evaluate, or you can schedule an appointment with a speech therapist, developmental pediatrician etc on your own (so you have control of the info/results) and they don't "label" your kid in case nothing is wrong.
[ Reply | Options ]The thing is most of what the teacher witnesses seems pretty innocuous to me. I have a young ds in a big class in a public K. No one has told me to get an evaluation, but since behavioral issues are persisting, I am starting to wonder if I should have an evaluation done to rule out any 'real' problems.
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[-]Need advice regarding DC and sleep. Diagnosed with PDD-NOS and verbal apraxia (limited speech). Great, loveable 3 year old, with no behavioral or apparent emotional issues, but having sleep issues for over a year. Will no longer sleep through the night, which increase his sensory issues, which in turn, make him more distracted in school and at home, and therefore harder for him to learn/retain academic and life skills. When he wakes in the middle of the night, he's often up for 2-3 hours, jumping, laughing inappropriately, stimming, etc. DH and I get no sleep, and it affects DS the next day. He stopped sleeping through the night about a year ago I believe b/c we were overstimulating him with therapies - interrupting his nap to take him here...
7 replies [ Reply | Watch | Options ]my 4 yo, who was also diagnosed PPD age 2.8(possibly autism if he would not start speaking by age 3)had also sleep problems-would go to sleep at10-11 pm,I think he was excited that we came from work and did not want to sleep,wanted to play.would sleep until10am every morning,inconsistent nap.The only thing that helped was waking him up every day at 8am, no matterhow late he went to sleep.first days were horrible, then he started going to sleep at 9pm,and we woke him up at 7:30.In the end,he would sleep7:30-8pm to 7am.We went to a private speech therapist 2xweek and now he is in the 90th percentile for speech.I wish you good luck!
[ Reply | Options ]When you say supplements, have you tried melatonin? I know of MANY spectrum kids who have been helped that way.
[ Reply | Options ]From OP: Thanks, guys. Have used melatonin. It's great to get him to fall asleep, which I have no trouble with even without it (esp when he's not had a nap). The trouble is getting him to STAY asleep. By the way, the earlier I put him to bed (ie 5:30 or 6) the longer he sleeps (ie 3:30). however, when i put him to bed (w/no nap) at 7:30 or 8, he'll wake at 11. the other night we got home late. i put him to bed at 9:30 and he woke up at 10:50p. :-(
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Hi. My son will be 3 in January. He also will wake up in the middle of night and start laughing and jumping for 2-3 hours. it drives us insane as welll I get so mad at him. I noticed it usually happens when I give him a bath in the evening. May i ask what cpse school your son goes to we are shopping for CPSE schools rightnow. Just wanted to let you know that you are not alone.
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[-]Sensitive subject: my son is 3yo and his penis is really small. pediatrician has assured us that nothing is wrong but I've also heard that he can sometimes say nothing is wrong if there is nothing you can do about it. I'd rather just know if there's something wrong (even if it's a wait and see situation). My son is totally well adjusted, normal, etc. so I have nothing to complain about but I can't help but worry. Please no flames and TIA...
58 replies [ Reply | Watch | Options ]Is it that noticeable? And if it is small, there is really nothing you can do about it, so don't worry.
[ Reply | Options ]it's so small that he's circed and you can't see the head, part of the issue is that it "curls up", but it is noticeably smaller...
[ Reply | Options ]maybe it's a circ issue. go see a pediatric urologist. we just had ds recirced. nto a big deal.
[ Reply | Options ]np - Why did you have to get him recirced? How old is he? We think we may have to do the same thing with our DS. Did DS handle it okay?
[ Reply | Options ]did your ped suggest you go? ours said that he couldn't have had more skin cut off so he wouldn't recommend getting recirced...
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no, did your mother take DES, a synthetic Estrogen, when she was pregnant with you? It is one odd side-effect of that disastrous drug. Ask your mom (if you can) whether she took DES. It was widely prescribed until 1971, and never actually banned altogether. Quite a few health and fertility issues have cropped up in the children and grandchildren of people who took it.
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Well there is nothing too be done. He doesn't have a hormone or chromosomal issue?
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what I'd like to do is get a referral to a pediatric urologist, but I don't know how to ask for it -- crazy, I know, since I'm typically a go-getter. I guess I should just call my doctor and tell him I can't stop thinking about it and need to close it out so I can move on?
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dumb question (sorry), but are you SURE there is a real difference between your child's and other boys'? I wonder bc I have 3 boys, one is pre-teen and the other two are the type to leave their bedroom doors open when they change clothes, even as teens. All three were small and the preteen is still very small. The teens have grown so much I am a little shocked at how large their penises are. When your ds reaches puberty, he will have a growth spurt EVERYWHERE, and you may be shocked too.
[ Reply | Options ]Don't meant to totally change direction, because I really feel for you, but now I am totally convinced the circ is a no go for me. I wouldn't want to even consider a re-circ. What a nightmare.
[ Reply | Options ]you really have to accept him. a lot of people's penises look very small when not erect. stop cutting on him and leave the poor boy alone
[ Reply | Options ]exactly. get him erect and see. I know some men have had issues where their penises are "hidden" inside (for a lack of a better description) and they were able to have a tendon/muscle connected with the penis cut so that they can have a more normal look. But they did this after they were done developing.
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DH here, I wouldn't sweat this for now. Some guys are *really* small when not erect, but gain much more size than those who are larger when flaccid. Also, you have no idea how big or small DS will be when fully grown. ITA with posters who say too early to worry -- if there were a real medical issue, would probably be other signs as well. Having said that, if seeing a specialist would give you more peace of mind, probably worth the money to do so.
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[-]My thirteen year old son has mild to moderate global hypotonia. Right now he's very skinny except his belly is a little rounded and soft. He's always been very unathletic, but now that he's in puberty, he's interested in how he looks and wants to look more "manly." (This is coming from him, not me.) Other kids have teased him and still do sometimes about how unathletic and soft his body is. I want to help him. I watched him do a martial arts demo the other day and he there was so much he couldn't do. His back was rounded during a lot of the exercises. He looked like he had CP. (he doesn't.) And even tho he goes to the martial art several times a week, he's still quite spindly. There's improvement, but it's very slow and if he misses even ...
6 replies [ Reply | Watch | Options ]My dd is the same, but she's only 6. I am also that way, kids thought I had CP when I was 12, 13, 14. I'm still very very rounded. i wish that my parents did somehting then, but of course they knew nothing. Have you been to OT or PT? I became stronger in high school doing spots that required eye hand coordination, does your dc have an over developed ability to catch things? That often comes with it and if you could use that it could be the way to go. I never could do martial arts even though it was recommended back in the 80's. My dd is trying tennis now.
[ Reply | Options ]He had OT/PT for a year when he was 10. That helped with sensory stuff, medialateral problems. He also doesn't see that well, no one seems to know why. So his ball catching isn't great. I"m afraid he's going to hurt himself - he always is complaining that this part or that part hurts. He can hyper extend and I worry that he'll hurt his joints. I"m a little hypotonic myself but just upper body. He can't play any competitive sport because he's so much worse than any kid his age. Martial arts has been a pleasant surprise, but now that he's trying, he notices how different his body is than other kids. I haven't told him he's hypotonic - his ped doesn't believe in it as dx except in really severe cases, and I was afraid he'd feel stigmatized. I ...
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I don't know anything about this condition, does it respond to weight lifting? Maybe a physiotherapist could act as a "personal trainer" for him (so it sounds cool rather than medical). It doesn't require co-ordination per se and he wouldn't be constantly compared to others in a competitive, group setting. Once he had some muscle tone and confidence maybe other things would come more easily.
[ Reply | Options ]I don't know what it responds to, honestly. He's gotten some tone with martial arts and when he was swimming. but it goes away quickly if he doesn't keep it up. And he still looks spindly. And I'm afraid to get a trainer for him who is not going to be informed about and sensitive to his condition because I'm afraid he could get easily hurt. I'd really like to find someone who is familiar with hypotonia either as a trainer, therapist who could work with him. Or a parent who's been through it and can tell me what to have him do.
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[-]Looking for a center based program for my 2 year old w/pdd-nos? Is anyone familiar with Thursday's Child and Challenge (both in Brooklyn). Any suggestions?
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[-]Is there such thing as a para or shadow for a middle school boy?
13 replies [ Reply | Watch | Options ]my son is horribly disorganized. we believe he has add. though not diagnozed yet. he is failing in school because he drifts off or doesnt pay attention, doesnt really write notes, or homeworks. Is always leaving things behind. His bookbag and binder is a constant mess. And putting things in order is a daunting task as he never writes headings and when he does write, its hardly ever in the correct section. We are going absolutely crazy with him and starting to feel hopeless, all i do now is get upset with him. if he had a paraprofessional or a shadow things will be so much easier.
[ Reply | Options ]Before leaping to a shadow, why not get him an organizational tutor? Someone ideally who can meet him after school AT school and work on desk, locker, backpack, HW...I've been doing this for YEARS and it has finally shown results...maturity is part of it, too, for a boy. How old is he? He may need until he's 13 to get it together. Don't give up - get a tutor - use as often as you can afford.
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OP, you should read this article! http://www.nytimes.com/2008/01/01/education/01boys.html
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[-]Best special education lawyer in NYC? Rosenberg? Duesdedi? What do they charge?
8 replies [ Reply | Watch | Options ]I was happy with Neal Rosenberg. Many people are happy with Regina Skyer. Gary Mayerson tends to take on the most controversial cases, but charges a premium. The cost depends upon hwether you go to impartial hearing or beyond and what you want done. A good budget without any info on your case would be 2500-5000. Othe names people like but are not as well known include Lauren Baum, Michelle Kule-Korgood (sp?).
[ Reply | Options ]What kind of cases does an education lawyer work on? Suing the DOE or private school for some reason?
[ Reply | Options ]I use Skyer and just about everyone else I know does too. I have more than one friend who used Rosenberg who ended up switching after not getting the attention they needed and/or just losing. Hear very good things about Lauren Baum.
[ Reply | Options ]if you need a true ball baster go with carolyn heft on 42nd street. total feminist and social justice type lawyer who will fight for you until the end. scorched earth policy. handle with care and only if you're really really pissed at doe.
[ Reply | Options ]My favorite is Mel Hoffman. I used to use Neal, but he can be a jerk. Mel is a sole practitioner which is great because he always answers your questions. He is prompt, efficient, friendly (well mannered, unlike Neal). He files quickly (meaning you get your money back quickly) and he always knows exactly where you stand. I really have loved working with him the last 5 or 6 years.
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Please enlighten me. I'm pretty sure that a pecial ed lawyer is not one who got admitted to the bar through some mainstreaming initiative. And I gather that they fight DOE to get better treatment for DC. In what forums? What's the big hurdle? TIA
[ Reply | Options ]In NYC, parents who are denied a free and appropriate public education (guaranteed through IDEA) send their children to a variety of private special education schools. In order to secure funding for those schools under IDEA, they generally use a lawyer who specializes in this area.
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