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  • [-]I am beginning to suspect my 8 year old boy has issues with ADD (not hyperactivity). I would like to have him evaluated and if necessary start being treated. Anyone have any recommendations for who to go to for this? Thanks.

    10 replies [ Reply | Watch | More
    01.10.12, 09:16 AM Flag ]
    • ugh. ::rolls eyes::

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      01.10.12, 09:18 AM Flagged
      • Not sure I understand your response. I have received comments from multiple teachers that he is very bright but has trouble focusing on his work in school. He is always being distracted by other things (this is across the board--academics, p.e., music, etc). I thought there might be some cognitive exercises etc. someone can work with him on that will improve his ability to concentrate on the tasks at hand.

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        01.10.12, 09:23 AM Flag
    • You need to find a neuropsychologist. I have heard good things about the NYU Child Study Center, Kathy Jantzen, David Salsberg, Eileen Fitzgerald, Barbara Kenner, Janine Pollak, Rene Badami, Antoinette Lynn and Nelson Dorta

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      01.10.12, 09:37 AM Flag
      • love Janine Pollack

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        01.10.12, 09:38 AM Flag
      • Thank you so much. My foremost concern is to get his confidence levels up again--he is getting frustrated and feels bad about himself when he is so much slower getting his work done than his classmates. He is my younger son and as much as I hate "doctoring" things I just feel there is something there that needs addressing. Thanks for your recommendation.

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        01.10.12, 09:42 AM Flag
      • Haven't been impressed at all by NYU. IMO I would go to David Salsberg or Nelson Dorta. ADD is Dorta's specialty too.

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        01.10.12, 10:26 AM Flag
        • any recent experiences with the Yellin Center, for testing or for educational services?

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          02.07.12, 09:31 AM Flag
    • Usually step 1 is to go to your ped- my ped is fantastic at ADD type issues and all childhood behavioral stuff. I hear a lot of people saying peds are useless at anything besides ear infections, but they just must have bad peds.

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      01.10.12, 09:45 AM Flag
      • Yes, I definitely plan to talk to the pediatrician--I like him a lot. Just wanted to get some more names from people who may have actually worked with someone. Thanks.

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        01.10.12, 09:59 AM Flag
    • did you check out the recent article on ritalin in the NYT? http://www.nytimes.com/2012/01/29/opinion/sunday/childrens-add-drugs-dont-work-long-term.html

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      02.03.12, 07:46 PM Flag
  • [-]Our 19 mo ds was diagnosed with PDD, Apraxia, & Motor dyspraxia yesterday. Finally a name for what is going on. anyone have any advice or suggestions? I feel so overwhelmed with all the info. we are changing his diet, adding vitamins, etc. in addition to major intensive therapy.

    23 replies [ Reply | Watch | More
    06.17.08, 10:10 AM Flag ]
    • Are you hooked into EI yet? What were you seeing that made you suspect a problem?

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      06.17.08, 10:13 AM Flag
      • We are starting EI hopefully by next week. They are asking for 15-20 hours of ABA therapy, speech therapy every day & 3 days a week of occupational therapy. He can't communicate at all- athough very social & happy. No pointing, no words, no idea who mama or dada is, no idea of body parts, etc.

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        06.17.08, 10:14 AM Flag
        • Can you tell me more about your son? My son is 15 months recieves speech, ot, pt but neurologist is reluctant to diagnose anything saying he is too young and may outgrow his delays. He also has feeding problems. When did you begin to notice areas of concern in your son?

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          07.06.08, 09:27 AM Flag
    • Our DS is mildly apraxic and has some motor issues similar to dyspraxia. I'm glad you have a name and a plan of attack for your DS - it makes such a difference. I'm sure you are starting PROMPT speech therapy, a lifesaver for my DS. But I did want you to know that most experts think that apraxia and dyspraxia cannot be reliably diagnosed until age 3. We did therapy assuming DS did, because we didn't want a delay in helping him.

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      06.17.08, 10:13 AM Flag
      • np - isn't dyspraxia no speech? Wouldn't this be evident long before 3?

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        06.17.08, 10:15 AM Flag
        • ^^ sorry I meant apraxia = no speech

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          06.17.08, 10:15 AM Flag
          • It's not necessarily no speech. But a type of disconnect between brain and mouth so forming sounds is very difficult.

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            06.17.08, 10:16 AM Flag
            • ok, my 2 yo has apraxia and is seen by EI Speech Therapist. I have never heard of PROMPT - is it more effective than traditional therapies?

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              06.17.08, 10:21 AM Flag
              • We were told it is the gold standard for apraxia. You can get more info by googling, and I think the apraxia website has a section about it.

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                06.17.08, 10:22 AM Flag
      • interesting. our developmental ped said he had to have PROMPT therapy, although our speech therapist (private- not through EI) is not trained in it. I may have to switch.

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        06.17.08, 10:15 AM Flag
        • There are some PROMPT books you can buy so you can train yourself a bit in the approach. Even though DS is doing amazing now at 6yo, I tend to use the multi-sensory approach with him still for homework, etc.

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          06.17.08, 10:18 AM Flag
    • Our son was diagnosed w/apraxia and SID, and has poor motor planning, delayed gross and fine motor delays. Our developmental ped (Agin) suggested fish oil supplements and I saw an immediate difference in both speech and behavior. We used nordic naturals Complete Omega 3.6.9. From talking to other moms, people seem to see either an immediate improvement or no improvement though everyone pretty much agrees there's no downside in trying it. Of course, our ds also gets tons of therapy since he was 18 mos. Now at 4, he is doing great.

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      06.17.08, 10:21 AM Flag
      • we saw Dr. Agin for the 1st time yesterday. very impressed. I tried to give my son the fish oil today & he wouldn't take it. any suggestions? also, did you take out all dairy, wheat, gluten, etc?

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        06.17.08, 10:22 AM Flag
        • no, we didn't change diet. He wouldn't take it directly so we put 1 tsp in his apple juice. Of course then he got addicted to apple juice but it was still worth it.

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          06.17.08, 10:24 AM Flag
          • np: Any luck with the flavored liquid or chews? Was thinking of trying the strawberry ones.

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            06.17.08, 10:26 AM Flag
            • I never tried the chews b/c he had some poor oral motor skills that I was afraid he couldn't chew them. The nordic naturals is lemon flavored

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              06.17.08, 10:30 AM Flag
          • thanks- very helpful. is your son now in a regular school?

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            06.17.08, 10:26 AM Flag
            • yes, he's been in mainstream preschool since 2 1/2 with limited SEIT hours (6 hrs/week). I feel like he'll always require more attention and work but no one else can really tell. He's got very scattered skills--- excellent memory, very advanced w/letters and numbers/time, etc. so it's not all bad

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              06.17.08, 10:28 AM Flag
              • that is awesome to hear. thank you for your help.

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                06.17.08, 10:30 AM Flag
                • good luck to you. It's really amazing how much early therapy helps. I'm so happy for you that you got the diagnosis so early.

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                  06.17.08, 10:32 AM Flag
    • Hi OP, so glad to see you got good support here - I just wanted to let you know that the majority of the SN moms have moved on to... you know where...and if you post there we will give you tons of support and info. You've done such a great thing for your ds and the early therapy will make a huge difference.

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      06.17.08, 02:20 PM Flag
    • where is a good place to talk with others about children with apraxia. We have 3yr old with apraxia and low tone and also saw Agin and on fish oil supplements.

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      02.04.12, 06:14 PM Flag
  • [-]An acquaintance recommended that I get a parent advocate to help me navigate the NYC public school system so that I can get whatever is available to help my special needs dd. Can anyone tell me more about what exactly parent advocates do and how one goes about getting one? Are they expensive? Part of the problem is I don't have money for the neuro-psych or private school my dd most likely needs so if a parent advocate costs a lot of money I won't be able to go that route. FWIW, I'm a single parent and have no other help.

    14 replies [ Reply | Watch | More
    01.26.12, 04:52 AM Flag ]
    • Doesn't the city offer this as a program?

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      01.26.12, 04:55 AM Flag
    • Parent advocates are volunteers at the Board of Ed (usually parents who have been through this) who help sn parents understand the system. They go to IEP meetings. Quality varies.

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      01.26.12, 04:57 AM Flag
    • What issue is it your dd has that the DOE isn't accommodating?

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      01.26.12, 04:58 AM Flag
      • Well that's part of the problem. She has been diagnosed with ADD but I know there are more issues, most likely dyslexia and other learning disabilities, possibly auditory processing disorder, I'm not sure. I can't seem to be able to figure out what to do for her that doesn't cost thousands of dollars. Everyone tells me she needs a full neuro psych eval but that costs a lot of money which I don't have. She's already repeating her current grade and not doing any better than she was last year, in fact, in some ways worse, especially behaviorally because she is very unhappy about her friends moving on and leaving her behind.

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        01.26.12, 05:20 AM Flag
        • Neuropsych evaluations are a lot of money, but worth every penny because they help you pinpoint your dc's problems and then give you recommendations to ameliorate them and finally the Board of Ed has to provide those accommodations. Some insurance covers the fees and/or your can ask if neuropsych will give you a sliding scale. This is a basic unfairness to the whole system where families with resources can get more covered by the board of ed.

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          01.26.12, 05:29 AM Flag
          • ^^My son went to a sn school for a while and I was really surprised by the wealth of the families of many of the students (including several kids whose parents are celebrities) AND there were no students from a disadvantaged background. It made me a little sick.

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            01.26.12, 05:31 AM Flag
          • NP: How do you go about finding out if insurance will cover this?

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            01.26.12, 05:48 AM Flag
            • I would ask insurance company and neuropsych. Also neuropsych's outside Manhattan are much cheaper than those based in Manhattan. But, make sure you go with one that has a good reputation. When we were interviewing for the sn schools, the first thing each school did was check out who did the evaluation. We used Janine Pollack in Brooklyn and she is well respected and truly an awesome human being.

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              01.26.12, 05:54 AM Flag
              • Thanks. Are there specific questions you think I should be asking or a specific line of questioning to follow? I don't trust my insurance company , especially if I don't know precisely how to push for a true & correct answer.

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                01.26.12, 06:05 AM Flag
    • How old is she and what are her specific problems? (Not her labels but things like, she doesn't understand what she reads, or her essays are very disorganized, or she is unfocused.

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      01.26.12, 05:41 AM Flag
    • How old is dd? For younger children (and not sure what age this goes up to), the Board of Ed offers free evaluations and then services. Some of these services are provided in school. CSE, the Committee on Special Education, is the agency w/in the Board of Ed that is in charge of this. Here is a link to the process for evaluations: http://schools.nyc.gov/NR/rdonlyres/0797E0DD-0BD0-4734-9D50-1F5453198287/0/Parent_Guide_English.pdf

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      01.26.12, 06:06 AM Flag
      • Board of Ed evaluations are not as detailed as neuropsychs. Probably for a reason, the more tests the more recommendation. The more recommendations, the more services.

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        01.26.12, 06:47 AM Flag
    • There is also an NGO called Advocates for Children that can help you with this.

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      01.26.12, 06:30 AM Flag
    • You can go to you be mom dot com, they helped me a lot. If you want to email me at anonmomofthree at gmail I can also offer some suggestions. I never check that account but will check it today.

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      01.26.12, 06:46 AM Flag
  • [-]My son was just diagnosed with apraxia. Can anyone recommend a speech therapist they've used through EI? Thanks.

    9 replies [ Reply | Watch | More
    12.15.11, 08:17 PM Flag ]
    • I'm currently using New York Infant & Toddler Center via EI. They seem quite good and my kids love the therapists. They are very pro active in getting the right approach but I have only been using them for 4 mths.

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      12.15.11, 08:20 PM Flag
      • Do your kids have Apraxia? Have you seen improvement over the last few months?

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        12.15.11, 08:26 PM Flag
        • Not yet but I suspect this is going to be their diagnosis and so does their co ordinator. My twins are severely speech delayed and have had and are still having multiple evals. I have seen a little progress in their receptive speech but still not a word at 2.3 mths. But the therapists are continuing to take new approaches, seek new evaluations and recommend different frequency and regularity of sessions etc. They have been great to date. I can't say we have had massive improvement but I have been told it's early days.

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          12.15.11, 08:39 PM Flag
          • Thanks for the recommendation. :)

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            12.15.11, 08:48 PM Flag
      • Not sure if you are still on but PRMOPT based Speech therapy was a MIRACLE for my approaxic son. If you goole prompt they have a list of certified therapists in NY. Through EI it may be a bit tougher. Ask you EI coordinator to look for PROMPT certified even if it means looking beyond coordinator's agency (you can build your team from multiple agencies). Also post on the SN borad for youbemom. Very active and informed crwod over there.

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        12.16.11, 03:16 PM Flag
        • Some private pay people who do PROMPT are Heidi Volosov and Debra Hagen. Worth it and your insurance may cover some or all of this. PROMPT is truly worth it.

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          12.16.11, 03:17 PM Flag
    • My daughter attends the Manhattan Behavioral Center on UWS. It is a private pay clinic with phenomenal speech therapists. I started with an SLP through EI but was not satisfied with the quality of services I got. You can see their website at manhattanbehavioral.com

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      01.09.12, 07:13 AM Flag
    • Where do you live? I used SteppingStone for EI (sadly, they don't offer EI services anymore but you can call them for a referral.)

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      01.09.12, 07:15 AM Flag
    • Make sure that the SLP has been TRAINED in Kaufman method. It is THE best method for Apraxia.

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      01.21.12, 04:41 PM Flag
  • [-]has anyone heard of the rebecca school is it private or state funded

    19 replies [ Reply | Watch | More
    03.11.08, 04:45 PM Flag ]
    • Private and over 75K per year

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      03.11.08, 04:45 PM Flag
      • yikes-i thought so-i saw pics of it soooo nice.

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        03.11.08, 04:46 PM Flag
        • Owned by the same co that own Aaron, Claremont and Claremont Prep

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          03.11.08, 04:47 PM Flag
    • how old is your child?

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      03.11.08, 04:46 PM Flag
      • gonna be 3 in june

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        03.11.08, 04:46 PM Flag
        • that looks like such a great program

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          03.11.08, 04:48 PM Flag
    • private, you can get reimbursements though. One well renowned ed atty, though told me he wouldn't send any kid to Rebecca these days.

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      03.11.08, 04:47 PM Flag
      • why? how do i get reimbursed?

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        03.11.08, 04:49 PM Flag
        • you have to prove that DOE options are not appropriate and that Rebecca is - not easy and will cost you at least 5K in lawyer fees and then some if you have to fight.

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          03.11.08, 04:50 PM Flag
        • you hire an attorney, and I doubt any would fight for rebecca if they didn't think you'd get it...and they know their stuff.

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          03.11.08, 04:59 PM Flag
      • why?

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        03.11.08, 04:50 PM Flag
        • why what?

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          03.11.08, 04:58 PM Flag
          • why wouldn't he send any kid there?

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            03.11.08, 04:59 PM Flag
        • OR: I don't know why he said it, but since it's what he does, i assume he has reasons.

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          03.11.08, 05:00 PM Flag
      • I am a pretty savy person and I sent my kid there-- who is doing great there, by the way. I am really happy with the school. Don't know why that attorney spoke negatively. That is the first negative feedback I have heard. I understand most parents ge 100% back.

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        03.12.08, 10:32 AM Flag
    • There is another new school that is up to $95K.

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      03.11.08, 05:09 PM Flag
      • name?

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        03.11.08, 05:44 PM Flag
        • It's called the Manhattan Childrens Center: http://manhattanchildrenscenter.org

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          03.11.08, 07:17 PM Flag
          • my daughter attends manhattan Childrens Center> they have 1:1 ABA and the staff is fabulous. They also have a new 8:1:3 class for children who are PDD and dont need the 1:1. From what I hear next Sept 2012 they are opening a class for children who are speech and language impaired only with a great inclusion component. MCC has changed our family's life. I love it.

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            01.09.12, 07:46 AM Flag
  • [-]So, wow, I didn't realize McCarton had her own school. Or, I didn't make the connection. Now, I think I need to move to NYC.

    23 replies [ Reply | Watch | More
    04.02.08, 12:42 PM Flag ]
    • it is an incredible school, tiny and intense, but incredible

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      04.02.08, 12:45 PM Flag
      • op: after watching that CBS piece, I'm seriously salivating. I want to move. (I'm IL mom btw)

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        04.02.08, 01:22 PM Flag
        • Good luck - it has a wait list of nearly 100 people

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          04.02.08, 03:32 PM Flag
          • oh well! Looked great though.

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            04.02.08, 05:50 PM Flag
    • As much of a pain as it is here, I feel like I am in the bread basket for autism!

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      04.02.08, 12:49 PM Flag
      • pardon?

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        04.02.08, 12:57 PM Flag
        • All the services, therapists, schools, awareness, support groups, activities....

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          04.02.08, 12:58 PM Flag
          • oh, you mean in nyc?

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            04.02.08, 01:00 PM Flag
            • Yup!

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              04.02.08, 01:01 PM Flag
              • Ah, I understand. We live in NYC for that reason too (for McCarton school actually) and it is sucking every penny out of us, but we will stay bc it is worth it.

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                04.02.08, 01:06 PM Flag
                • Have you had good luck with suing the DOE for reimbursement?

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                  04.02.08, 01:17 PM Flag
                  • yes (sorry. just getting back to the board)

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                    04.02.08, 03:51 PM Flag
                • Seems to be a fair % of families who move to NYC for the McCarton School.

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                  04.02.08, 01:28 PM Flag
    • what is the student population like at the McCarton school? alllevels of ASD or is it for more severe cases?

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      04.02.08, 01:16 PM Flag
      • it is all levels though it is 1:1 so when kids get to a point where they need a less restrictive environment, they do move on to mainstream with support or at least a special needs school with a much lower ratio. but there are kids there who are quite hig functioning, some who have profound issues and some in between. they are all making significant progress and it is thrilling to see.

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        04.02.08, 03:55 PM Flag
    • Rebecca School is newer but showing good results so far with autistic students

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      04.02.08, 02:14 PM Flag
      • interesting, our developmental ped. said she hasn't heard a good thing about the school.

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        04.02.08, 02:16 PM Flag
        • really? That surprises me. Who is your developmental ped?

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          04.02.08, 02:34 PM Flag
        • NP: some people do not like Rebecca b/c it's all about floortime - to the far extreme where it seems like the kids entirely run the show

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          04.02.08, 03:33 PM Flag
      • doing great engaging the kids. It is 2 kids for every adult in the classroom for this purpose. Hard to hide with 2 on 1!

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        04.02.08, 02:35 PM Flag
    • Manhattan Childrens Center is supposed to be good too.

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      04.02.08, 02:19 PM Flag
      • my daughter attends Manhattan childrens center and it is amazing and they have expanded and now have all different types of classes for children who are PDD and speech and language impaired.

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        01.09.12, 07:42 AM Flag
  • [-]Any one with a preschooler who has been diagnosed s PPD-NOS?

    3 replies [ Reply | Watch | More
    11.15.11, 05:02 PM Flag ]
    • I don't have one but I do work with many. Want to ask me something?

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      11.15.11, 05:26 PM Flag
    • I have a 4 yr old nephew who has recently been diagnosed PPD...just was moved out of a regular day care and in to a school for children with special needs run by the local town in NJ. I knew something was not right with him for over a year - parents were in denial.

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      11.15.11, 07:24 PM Flag
    • yes my daughter is turning 5 and was diagnosed with PDD. She no longer attends a CPSE program because I wasnt satisfied with the level of services I was getting from her preschool. She has attended Manhattan Childrens Center for the past 18 months and she has made so much progress since she began.

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      01.09.12, 07:20 AM Flag
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