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UB Like it's 1776!
Posted September 13, 2007(191 replies)
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[-]Does anyone have contact information for Bob Bartlett? And/or comparisons of his evaluation process vs. Alison Meyer? Thanks.
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[-]I am beginning to suspect my 8 year old boy has issues with ADD (not hyperactivity). I would like to have him evaluated and if necessary start being treated. Anyone have any recommendations for who to go to for this? Thanks.
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Not sure I understand your response. I have received comments from multiple teachers that he is very bright but has trouble focusing on his work in school. He is always being distracted by other things (this is across the board--academics, p.e., music, etc). I thought there might be some cognitive exercises etc. someone can work with him on that will improve his ability to concentrate on the tasks at hand.
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You need to find a neuropsychologist. I have heard good things about the NYU Child Study Center, Kathy Jantzen, David Salsberg, Eileen Fitzgerald, Barbara Kenner, Janine Pollak, Rene Badami, Antoinette Lynn and Nelson Dorta
[ Reply | More ]Thank you so much. My foremost concern is to get his confidence levels up again--he is getting frustrated and feels bad about himself when he is so much slower getting his work done than his classmates. He is my younger son and as much as I hate "doctoring" things I just feel there is something there that needs addressing. Thanks for your recommendation.
[ Reply | More ]Haven't been impressed at all by NYU. IMO I would go to David Salsberg or Nelson Dorta. ADD is Dorta's specialty too.
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Usually step 1 is to go to your ped- my ped is fantastic at ADD type issues and all childhood behavioral stuff. I hear a lot of people saying peds are useless at anything besides ear infections, but they just must have bad peds.
[ Reply | More ]did you check out the recent article on ritalin in the NYT? http://www.nytimes.com/2012/01/29/opinion/sunday/childrens-add-drugs-dont-work-long-term.html
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[-]Did you see this NYTimes article, called "I Had Asperger Syndrome. Briefly." this rings very true to me and my ds. WDYT? Link: http://www.nytimes.com/2012/02/01/opinion/i-had-asperger-syndrome-briefly.html
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[-]Our 19 mo ds was diagnosed with PDD, Apraxia, & Motor dyspraxia yesterday. Finally a name for what is going on. anyone have any advice or suggestions? I feel so overwhelmed with all the info. we are changing his diet, adding vitamins, etc. in addition to major intensive therapy.
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We are starting EI hopefully by next week. They are asking for 15-20 hours of ABA therapy, speech therapy every day & 3 days a week of occupational therapy. He can't communicate at all- athough very social & happy. No pointing, no words, no idea who mama or dada is, no idea of body parts, etc.
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Our DS is mildly apraxic and has some motor issues similar to dyspraxia. I'm glad you have a name and a plan of attack for your DS - it makes such a difference. I'm sure you are starting PROMPT speech therapy, a lifesaver for my DS. But I did want you to know that most experts think that apraxia and dyspraxia cannot be reliably diagnosed until age 3. We did therapy assuming DS did, because we didn't want a delay in helping him.
[ Reply | More ]Our son was diagnosed w/apraxia and SID, and has poor motor planning, delayed gross and fine motor delays. Our developmental ped (Agin) suggested fish oil supplements and I saw an immediate difference in both speech and behavior. We used nordic naturals Complete Omega 3.6.9. From talking to other moms, people seem to see either an immediate improvement or no improvement though everyone pretty much agrees there's no downside in trying it. Of course, our ds also gets tons of therapy since he was 18 mos. Now at 4, he is doing great.
[ Reply | More ]we saw Dr. Agin for the 1st time yesterday. very impressed. I tried to give my son the fish oil today & he wouldn't take it. any suggestions? also, did you take out all dairy, wheat, gluten, etc?
[ Reply | More ]no, we didn't change diet. He wouldn't take it directly so we put 1 tsp in his apple juice. Of course then he got addicted to apple juice but it was still worth it.
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yes, he's been in mainstream preschool since 2 1/2 with limited SEIT hours (6 hrs/week). I feel like he'll always require more attention and work but no one else can really tell. He's got very scattered skills--- excellent memory, very advanced w/letters and numbers/time, etc. so it's not all bad
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Hi OP, so glad to see you got good support here - I just wanted to let you know that the majority of the SN moms have moved on to... you know where...and if you post there we will give you tons of support and info. You've done such a great thing for your ds and the early therapy will make a huge difference.
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[-]An acquaintance recommended that I get a parent advocate to help me navigate the NYC public school system so that I can get whatever is available to help my special needs dd. Can anyone tell me more about what exactly parent advocates do and how one goes about getting one? Are they expensive? Part of the problem is I don't have money for the neuro-psych or private school my dd most likely needs so if a parent advocate costs a lot of money I won't be able to go that route. FWIW, I'm a single parent and have no other help.
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Well that's part of the problem. She has been diagnosed with ADD but I know there are more issues, most likely dyslexia and other learning disabilities, possibly auditory processing disorder, I'm not sure. I can't seem to be able to figure out what to do for her that doesn't cost thousands of dollars. Everyone tells me she needs a full neuro psych eval but that costs a lot of money which I don't have. She's already repeating her current grade and not doing any better than she was last year, in fact, in some ways worse, especially behaviorally because she is very unhappy about her friends moving on and leaving her behind.
[ Reply | More ]Neuropsych evaluations are a lot of money, but worth every penny because they help you pinpoint your dc's problems and then give you recommendations to ameliorate them and finally the Board of Ed has to provide those accommodations. Some insurance covers the fees and/or your can ask if neuropsych will give you a sliding scale. This is a basic unfairness to the whole system where families with resources can get more covered by the board of ed.
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I would ask insurance company and neuropsych. Also neuropsych's outside Manhattan are much cheaper than those based in Manhattan. But, make sure you go with one that has a good reputation. When we were interviewing for the sn schools, the first thing each school did was check out who did the evaluation. We used Janine Pollack in Brooklyn and she is well respected and truly an awesome human being.
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How old is dd? For younger children (and not sure what age this goes up to), the Board of Ed offers free evaluations and then services. Some of these services are provided in school. CSE, the Committee on Special Education, is the agency w/in the Board of Ed that is in charge of this. Here is a link to the process for evaluations: http://schools.nyc.gov/NR/rdonlyres/0797E0DD-0BD0-4734-9D50-1F5453198287/0/Parent_Guide_English.pdf
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[-]Can anyone recommend a nanny that has experience working with special needs kids? My long time nanny just quit due to an injury so I need to find someone new - thanks.
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[-]My son was just diagnosed with apraxia. Can anyone recommend a speech therapist they've used through EI? Thanks.
9 replies [ Reply | Watch | MoreI'm currently using New York Infant & Toddler Center via EI. They seem quite good and my kids love the therapists. They are very pro active in getting the right approach but I have only been using them for 4 mths.
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Not yet but I suspect this is going to be their diagnosis and so does their co ordinator. My twins are severely speech delayed and have had and are still having multiple evals. I have seen a little progress in their receptive speech but still not a word at 2.3 mths. But the therapists are continuing to take new approaches, seek new evaluations and recommend different frequency and regularity of sessions etc. They have been great to date. I can't say we have had massive improvement but I have been told it's early days.
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Not sure if you are still on but PRMOPT based Speech therapy was a MIRACLE for my approaxic son. If you goole prompt they have a list of certified therapists in NY. Through EI it may be a bit tougher. Ask you EI coordinator to look for PROMPT certified even if it means looking beyond coordinator's agency (you can build your team from multiple agencies). Also post on the SN borad for youbemom. Very active and informed crwod over there.
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Has anyone heard about the Manhattan Childrens center new SPEECH AND LANGUAGE program opening? I read that they will focus on the communication and language needs of its students with an emphasis on academics, speech and language, auditory processing, apraxia, social skills and sensory processing through a transdisciplinary model.And it is not for kids on the spectrum. I know that their ABA program is top notch so Im curious about this new program they are opening in September.
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[-]has anyone heard of the rebecca school is it private or state funded
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private, you can get reimbursements though. One well renowned ed atty, though told me he wouldn't send any kid to Rebecca these days.
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It's called the Manhattan Childrens Center: http://manhattanchildrenscenter.org
[ Reply | More ]my daughter attends manhattan Childrens Center> they have 1:1 ABA and the staff is fabulous. They also have a new 8:1:3 class for children who are PDD and dont need the 1:1. From what I hear next Sept 2012 they are opening a class for children who are speech and language impaired only with a great inclusion component. MCC has changed our family's life. I love it.
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[-]So, wow, I didn't realize McCarton had her own school. Or, I didn't make the connection. Now, I think I need to move to NYC.
23 replies [ Reply | Watch | Morewhat is the student population like at the McCarton school? alllevels of ASD or is it for more severe cases?
[ Reply | More ]it is all levels though it is 1:1 so when kids get to a point where they need a less restrictive environment, they do move on to mainstream with support or at least a special needs school with a much lower ratio. but there are kids there who are quite hig functioning, some who have profound issues and some in between. they are all making significant progress and it is thrilling to see.
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[-]Can anyone recommend a NYC special-ed school that specializes in working with children with Autism? I am posting on behalf of df whose 4 yr old son was diagnosed. Due to the expense of many of these schools (Manhattan Children's Center/Children's Academy), they are looking to "sue" the Dept of Ed. for reimbursement at a private special-ed preschool? Has anybody BTDT? Thank you in advance!
5 replies [ Reply | Watch | MoreTry you be mom. They have a special needs board there you can post on, and you will get lots of great responses! My son has Asperger's, but he just went to a normal preschool (and had a pretty great experience). Was your friend's son just diagnosed? If so, are his symptoms mild? If so, she might consider enrolling him in a normal preschool and doing therapy outside of it (being around "normal" kids is a big plus for kids with social challenges).
[ Reply | More ]The only private spec ed preschool is Stephen Gaynor, which is just opening, but I am not sure they take full blown autism. You can try McCarton Center, but I don't know if they start that yound. All the other spec ed preschools in NYC are under CPSE with the best of the bunch being Child Development Center, YAI, and Gillen Brewer. The whole area of Carter Funding and suing for reimbursement starts in K and beyond.
[ Reply | More ]my daughter attends the Manhattan Childrens Center which is a private pay ABA school like McCarton School. She has attended since she was 3 years old and Ive been reimbursed through Carter funding for 2 years. Also, my daughter is now using words and is toilet trained and the school has changed our life.
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[-]Can anyone tell me what the academic calendar is forYAI Gramercy or Roosevelt? Is 12 months really 12 months?
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yes my daughter is turning 5 and was diagnosed with PDD. She no longer attends a CPSE program because I wasnt satisfied with the level of services I was getting from her preschool. She has attended Manhattan Childrens Center for the past 18 months and she has made so much progress since she began.
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[-]I'm looking for a recommendation for a social skills group for my son who is 8 yrs old on the east side. I was given the name of Sandy Greenbaum but since school and home are on East Side prefer not to go west. Please send any suggestions.
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[-]Will olsat tester say what a pictured object is if child doesn't know and asks? A made-up example: what if a child doesn't know what a football looks like and doesn't even know that it's a kind of ball?
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[-]I am looking for drum teacher who understands needs of ADHD boy and some processing delays. It is difficult to find and who works in Manhattan. Even if you know of an teacher of another instrument, please pass along. Thanks; son is 8
6 replies [ Reply | Watch | MoreThis is a random and rare post. LOL I actually knew a drum teacher who specialized in training kids with certain issues. Gosh darn it, he moved to Tennessee last year. I'll send him an email and ask him if he has any recommendations.
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If he were born in this day and age he would have been diagnosed with ADHD and dislexia. His sister actually bought him his first set of drums and it changed his life when he was a kid. His mom would constantly yell at him and call him dummy. It was awful. He turned out to be an in-demand session drummer and very well respected in the music community.
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City Music School (on West 36th St) We had a good experience with our son, who has language delays and was in a CTT class. His teacher was Mr. A (Alan Aurelia.) Mr. A teaches a variety of instruments, including drums.
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